Wednesday 16 March 2011

Upping the dose.

A week ago I increased my dose of Keppra from 1000mg per day to 1500mg per day. This increase was due to a phone conversation with a specialist that, after describing some newer 'symptoms', resulted in them wanting me to increase the dose as they think it's highly likely they are other forms of seizure. It shocked me how quick they got the medicine to me though. I had a phone call  from the hospital one evening and the  following morning recieved a call telling me my medicine was waiting for me at the pharmacy.

So one week on I'm still getting used to it. It makes me feel sick from the moment I wake up until well into the day about 2/3 in the afternoon some days are worse than others. I also get VERY tired.

I try to sleep between 8 and 10 hours a night. But that's far easier said than done. Take last night for example I was in bed and asleep by just gone 11pm but managed to wake up almost on the hour EVERY hour all night... until I got so fed up and got up at 8. (I blame that I read a magazine article on Insomnia just before falling asleep...) As much as I think the remarkable ability to wake up in a distinct pattern with no alarms could  be considered a skill in itself it really isn't good for general functionality the next day!!

So it's back to good old afternoon naps. Well I say naps they're more like mini sleeps usually 1-2 hours sometimes up to four hours or more. Needless to say it eats out of my day a huge amount. But if I don't try to sleep during the afternoon I simply don't function normally from mid afternoon until I finally go to bed. I'm hoping that in a few weeks I won't have the need to sleep as much though :)

Hopefully this increase will help with my already existing seizures and these newer ones. Guess I'll find out over the next few weeks leading up to my neurology appointment. It makes me nervous just thinking about what they will have to say and what it will spell for my immediate future. But I figure I can't change anything so I'll just ride it out and focus on the good things in life :) 

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