Friday 28 February 2014

Family Matters

The word "rest" is mentioned in my life time and time again. Given that it should always be at the front of my mind I try my best to shove it as far back as possible. Of course there are plenty of times (FAR more than I'd ever wish on anyone) when rest simply has to come first before anything else mainly because of seizures or medication.

I'm stubborn though and it takes the simplest of invites or ideas of something to do and I'm off. So when I was stuck in my hospital bed a couple of weeks ago and my auntie told me she was travelling down to London in the near future I immediately asked her if I could come with her for the journey and take the opportunity to visit my sister and niece. They live in a town 200 miles away from here where we both used to live with our mum, so it's not particularly easy to visit. 

We arrived back late last night from a lovely couple of days. We played in the park, went swimming, visited a friend and spent time chatting over cake in a nice little patisserie in town. Perfect. 

Recent events have certainly added to my knowledge that nothing is more important than family. There's isn't a thing that would keep me from them. x 

Monday 24 February 2014

Boost

Slowly getting back into life and feeling where I belong.







Hurrah for fresh air and friends!

Thursday 20 February 2014

Released

I'm finally out of hospital. Thankfully. 

This week is all about getting back into the swing of life again. Seeing people, going places and sorting out my surroundings. 

Trying to get back to "normal" I think they call it. It's tiring though. 

Soon I'll type up everything that has happened in the last month since I got so poorly. I'm still counting me blessings for now though and I need to be in the right frame of mind before I go back to that place. 

x

Sunday 16 February 2014

My new physio!

My youngest sister has recently been recruited as my personal physiotherapist! 

Spending a month in hospital has stripped a surprising amount of fitness away from me. Once I was able to walk again a couple of weeks after being admitted I began taking little trips around the ward to work on my legs. I'm not allowed off the ward by myself for obvious reasons but when it comes to visiting times on a couple of occasions I have gone for a walk around the hospital so I can stretch my legs a little further. Without fail though later in evenings just that little bit of exercise leaves me very tired. It's ridiculous really how you can go from being relatively fit to finding a flight of stairs leaves you out of breath??

Now when I'm home the plan is to take a walk up and down the valley lanes where we live to work on my leg muscles and general fitness when we can. This is one of our rituals in life anyway, just ambling along talking about anything and everything. I can't wait to get back to normal again :) 

I know I have to ease myself back into everyday life again slowly so this is a good way to get back into it along with some fresh air. Obviously we will have to be careful and not over do it as the last thing I want is to get to tired to fast, have a big seizure and end up right back in hospital again..

Nice light exercise will be my best friend! 

Friday 7 February 2014

Please forgive my absence..

On the 21st of January my latest anti-epileptic medicine reached toxic levels in my blood and within no time at all sent life into a very poorly chaos.

I will write up about this scary time that is currently on-going in full at another time. I don't think I'm up for going into to much detail about everything at the moment though as it's all to fresh. Plus I will need to get the stories of what happened from my family to piece it all together as a lot of I simply don't remember.

The basic gist though is that from early afternoon that day I have been in hospital (well two actually). The first being our local general hospital but I was then transferred over to a specialist neurology hospital further away from home. This hospital being the Walton Centre for Neurology and Neurosurgery

I have improved massively medically but my doctors have told me I am staying for an indefinite amount of time. I'm not going to complain in any way as this hospital really is incredible.

Much love for now all :) x