It's a beautiful sunny day here on my mum's farm on the beautiful South Devon coast. Everybody here is pottering around and the atmosphere is generally a very relaxed one. As much I love being here and it's brilliant to spend some time with my family I have a little something playing my mind.... While on the train down to here yesterday I had a phone call from my specialist nurse which I was expecting as I had spoken to her on Tuesday. Except instead of her calling to say that she had spoken with my neurologist and I simply need to increase my medicine a wait for my next appointment, she instead told me that my neuro wanted me to attend an appointment as soon as possible and to make sure I go along to the clinic on Tuesday coming up. She said that she didn't want to go into to much detail over the phone but they are worried about my current situation and are not happy to leave it any longer. To say I was shocked is a massive understatement! The waiting list for appointments is MONTHS!! I am yet to receive my EEG results which worries me slightly too.. although she didn't mention anything about it on the phone.
Needless to say I'm worried but I will try to relax a bit and enjoy my time away and let myself be looked after by my family for a while :) Oh good news though my mum will be able to come along to this appointment with me which means I'll won't be quite so nervous and hopefully she will be able to remember a whole lot more of what will be discussed than what I can!!
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As unfortunate as the subject is, this is great luck, Jade! Personally, I wouldn't worry too much about your EEG results at this point. One of the main purposes of the EEG is to detect abnormal brain wave activity -- the sort of stuff epileptics are under a good part of the time. When I was told I had that activity (and thus was officially diagnosed) nothing really changed except for some terms. It does open up new treatment options when what you specifically have is found out, and where it's coming from.
ReplyDeleteUse your mum as your advocate during this appointment coming up! Without mine I wouldn't be anywhere right now, she's been the big memory bank per se that makes sure I don't forget prescriptions, appointments, facts, etc. And a happy face and a warm hand when you're not feeling so well! I think it may be a GOOD sign that they want to see you right away. Maybe they figured something out or are about to, and that can mean only progress.
Best wishes to you -- keep on 'keepin on!
I am with Tyler on this one. :) If you need to, you can talk to them if they wish you to go straight to the Emergency Room for the EEG/MRI that way you can get the test done ASAP. Positive thoughts are sending your way...Feel the force. :) that's what my little toodles says..those brain waves are the force. :)
ReplyDeleteThanks both :) I'm trying to do anything to distract myself from wondering whats next! My mum being here is awesome though :D Well I'm off to the hospital now trying not to worry :/ See you on the other side X
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