I can't quite believe the last few days. When I woke up on monday morning little did I know that the couple of days following I would end up appearing on live TV and live on the radio helping to raise awareness for Epilepsy charities following a campaign launch.
Monday morning a new Epilepsy awareness campaign was launched called "Everyone knows Someone" by Young Epilepsy, Epilepsy Society and River Island. A press release was sent out at the beginning of the week with a little story of my personal experience of living with Epilepsy as part of it. Monday afternoon I received a phone call from Young Epilepsy asking me if I would like to appear on TV to be interviewed alongside Young Epilepsy nurse Kirsten McHale the following morning on ITV'S Daybreak.
Monday morning a new Epilepsy awareness campaign was launched called "Everyone knows Someone" by Young Epilepsy, Epilepsy Society and River Island. A press release was sent out at the beginning of the week with a little story of my personal experience of living with Epilepsy as part of it. Monday afternoon I received a phone call from Young Epilepsy asking me if I would like to appear on TV to be interviewed alongside Young Epilepsy nurse Kirsten McHale the following morning on ITV'S Daybreak.
It went really well! We spoke out about Epilepsy to a large audience, people out there were listening and watching as two people with Epilepsy as a huge part of their lives spoke from their hearts. It went by in a flash and I did leave with a billion more things I wanted to say but lets face it we could have been there all day however and most importantly of all we introduced that tiny bit more awareness into the world. I think I can say for the both of us if not just myself that there was a rather large wave of relief to be ridden and an incredible high to be felt when the interview was over and we were lead from the studio. What a morning! Catch us in action at about 46 minutes into the show!
On the train back from London I had another phone call asking me I would like to take part in an interview live on BBC Radio Wales that afternoon. Having had confidence instilled in me from the morning's events and still riding on an adrenaline high I was more than up for it. I was to provide the personal touch to an interview with Epilepsy Specialist nurse Clare Harrison. If you want to listen to what was said there's a link to the program here the interview starts at around 17 minutes in.
What an incredible experience, I feel so privileged to have had the opportunity to raise some much needed awareness for this condition in such a amazing ways. I certainly won't be forgetting it :)
So what's it like to be interviewed live on national television and radio? I'll tell you... It's adrenaline pumping, exciting, scary, exhilarating, nerve-wracking and unbelievably brilliant! I shook from head to toe, was convinced my ability to talk would desert me and would somehow ruin the whole thing. The bit that worried me the most and I kept completely quite however, was my absolute dread I would have a seizure of some sort live on screen/air. Now as much as that would be the ultimate way to demonstrate.. I would not have appreciated it! Where on earth did my positive attitude go?? There was no need to worry though it turns out.
Thank you to ITV and BBC for showing interest in the campaign and condition and allowing these interviews to take place. Here's to the future of peoples understanding into the world of Epilepsy.
Weirdly, I'm normally watching Daybreak at the time you were on but I had the chance for a lie-in and missed you. But, I just watched it online now. You were amazing, I'm really proud of you. You got everything out perfectly and I think the segment highlighted the important issue of people not knowing what to do when faced with a seizure.
ReplyDeleteGo Jade! The whole thing was definitely Jade 1, Epilepsy 0 as the seizures didn't have a chance to ruin anything for you.
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:o I've only just seen this! Thank you hehe it was sooo scary but such a brilliant feeling at the same time! My uni are writing up a piece on the whole thing too so even more awareness raised very soon :D Hope you're well xx
DeleteThat's brilliant. You're doing so well with raising awareness! I think it'll be great for young people to see someone in the same boat who has gone through university and come out the other side despite having epilepsy and dealing with everything that comes with the condition xx
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