The sun is shining today and as I sit looking through my photographs of recent times with friends with the cat curled up next to me, I can't help but think about the fact things could have been so very different now.
What I am about to type is made up of what
my family have told me and the tiny fragments I remember of the few days myself. It's the story of the day I could have died January the 21st 2014. I know every seizure could kill me but this time it was the very thing that was trying to save me that backfired.
Despite waking up from a longer sleep than
usual slightly later in the morning my day started off like most others. I
wandered down stairs and put the kettle on to make a cup of tea. My dad
returned home from taking a couple of clients out for driving lessons. We were
sitting at the kitchen table with our drinks chatting away when my vision
started to roll. I can’t quite explain how this looked to me… maybe a little
like an old tv used to scroll from top to bottom of the screen continuously. It
was so fast and overwhelmed my entire vision. I turned to my dad and asked him
if my eyes were moving at all when his answer came as a “no” I went onto
explain what was happening. He told me to go and lie on the sofa with my eyes
closed to see if it passed. At first this actually worked in that if I lay with
my eyes closed my world was still again but as soon as I opened them again the
rolling vision was worse than ever. By now something was obviously wrong as my
balance was beginning to go as well and even trying to sit up was near impossible. My dad rang up my doctors surgery to see
if they had any emergency appointments, there weren't.
In the mean time my step-mum returned home
apparently I was blabbing away all sorts of rubbish whilst trying to sip a drink to try and feel a little better. As long as I kept my eyes
closed as far as I knew I felt alright despite now knowing I was acting very strange.
Things soon changed though and even with my eyes closed my whole world started
rolling and swaying. Despite lying down and trying to focus I soon started
feeling very sick and before long out came the buckets and towels that I
swiftly filled time and time again.. My parents tried ringing the doctors surgery again and ask if a doctor can come out and see me but after them explaining what was happening they were told that the surgery were calling an ambulance to come to the house.
We live in the middle of the countryside miles way from anything so a first responder is sent out ahead of the ambulance as they can travel faster. They arrive within minutes and place me on oxygen whilst we wait for the ambulance. My general doctor also comes around to the house to witness what is going on. Apparently one of the first things he said was "well there's no waiting for you for your referral young lady" (I had already been referred to a new Epilepsy specialist by my previous neurologist) I had been to see my general doctor the week before to ask for it to be sped up, I guess he got a shock when he saw why..
In the ambulance I’m drifting
too far into unconsciousness so they attempt to wake me time and time again. My
heart isn’t beating properly so they repeat and ECG to check. My hands are blue
and freezing cold. I'm sick a few times more during the journey whilst unconscious. We arrive and despite the constant news reports of ambulances having to queue outside of accident and emergency departments at hospital I am taken straight in. Once I'm in the hospital they struggle to find access to my veins to give me fluids, in fact one of the junior doctors tells my family that I'm the first patient he has not been able to cannulate. Eventually though and leaving me looking like a pin cushion they are able to get a cannula in. Whilst waiting for the my blood results to come back I have some more seizures. Thankfully later that evening I am stabilised and conscious enough to talk a little although still very poorly and extremely tired. I couldn't open my eyes due to the intense rolling vision that was still occurring and a incredibly painful headache that left my barely able to tolerate the harsh white hospital lighting. I'm stable though, brought back from a serious case of deaths door. I have no idea what they pumped into me that day but I'm so thankful that it worked.
It turns out my latest anti-epileptic medicine had been gradually building up in my system until it reached the point of toxicity and poisoned my body sending my system into shut down.
This day was to lead to another four weeks recovering in hospital and having to be transferred to a neuro-specialist hospital for treatment. I was left with terrible vision, vomiting for days and unable to walk unaided. My physical recovery took a long time which I will write about soon. Mentally though, I still have along way to go.
It's a sobering thought but instead of dwelling on it I realise that I am very very lucky to be here. It's simple, if my dad followed by my step-mum hadn't of come home when they did things could have been VERY different.
