In the world of Epilepsy, today is a very special day. March 26th is known as Purple day the international day for Epilepsy awareness. People across the world are donning their purple clothes and doing something special in order to raise awareness and money for the condition!
This year there is of course the "selfie" trend well and truly in action. Charities have adopted the trend to help the effort of raising vital funds to aid their cause. Thankfully there are good few charities working away supporting Epilepsy but today I have chosen one that is particularly close to my heart. Epilepsy Sucks UK are a wonderful small charity that really do work incredibly hard to raise funds to provide children and adults alike who suffer with nocturnal seizure a free anti-suffocation pillow. Not only that (as if that wasn't enough!!) they also provide constant support through a Facebook page (here's a link) to thousands of people all hours of the day. I can safely say that without my pillow I may not be here today and without there support my strength would be dwindling! Below is my effort to help them raise a few more pennies for the pillow pot :)
So if you see someone or something purple today give Epilepsy a thought and wish for a cure please :) Have a lovely day my fabulous purple people x
My friends and I decided I was in need of a change.
So off we went to get my hair cut back into a neat little pixie crop and then we went ahead and dyed it blonde! I haven't been blonde since I was about 3! It was so much fun and I really was nervous as to what the outcome might have been but I am so so pleased! In fact before I even went to the hair dressers we had already been into a drug store were I had picked out a vibrant shade of red for my hair. We also picked out a couple of new items for my little make up collection. It's feel so good to add a bit of colour to it and all of it combined serves to be a very nice pick me up. Sadly it won't be staying this colour for long as due to my medicines my hair is very weak so it won't be able to handle to much more dye!
This picture was taken a couple of days ago in Liverpool with my friend and ex housemate whilst on one of our little adventures where we meet up again and go and explore somewhere. She's a doctor in a very busy Birmingham hospital so trying to find some time to catch up isn't exactly easy. Safe to say we both had a lovely few days.
So many things to sort and do.
Lots of fun outings with friends.
My knee reaaaaaalllllyyyyyyy hurts from a seizure.
Bleached my normally brown hair blonde.
Feeling poorly sick tonight.
Bed.
The past couple of days have been far cheerier than of late which I am very grateful for. I've been out and about with friends making the most of days filled with walking, mountains, chickens, pancakes, rope-swings and plenty of other stuff. I even very unexpectedly joined a choir!! Having not sung in a choir for 10 years it felt lovely to be singing from a music book again even if it was hard to follow all the notes..
Today was a slow day resting from walking so much and tackling some of life's little niggling affairs that need to be dealt with over the phone etc. Bleurgh. I was having a little trouble sleeping earlier for some reason (very unlike me) so I ended up sewing a gift for my friends birthday. I hope she likes it :) Then I popped on here.
Tonight I'm not feeling overly great. Really rather miserable actually for no particular reason though, it's just one of those days. I've stayed out of the way of my family just looking for some alone time hanging out with the cat.
It's night time now and despite being tired I'm not in the mood to sleep.. sounds odd that doesn't it? I think I might get into one of those over-thinking everything moods if I lay my head on the pillow and shut my eyes. I know sleep won't come yet and I don't want to go where I think my brain might take me. My music has been playing quietly in the background while I've been creating a craft piece that I've been asked to make for a charity auction. The song "shine" sung by Birdy came on and I couldn't help but listen to every word. I'm not usually an overly emotional person and I certainly don't wear them on my sleeve but my goodness does this songs lyrics just about some up everything thats flying around in my head tonight. Here's a link... It's a beautiful song :)
You see at the moment I'm trying to decide what to do with my life and I find myself in the clutches of career decision making. It consumes my thoughts almost constantly both positively and negatively. I think I've decided that I would indeed like to progress into the field of radiology, either diagnostics or therapeutic thus combining my passion for imagery and newly acquired fascination with medicine. Either that or become a healthcare assistant. In order to do this I would like to study for a diploma in health and social care and this requires working or volunteering in a healthcare setting. I'm hoping that maybe I will be able to gain some experience in a care home or somewhere similar but that's a whole other quest in itself as I live in the middle of nowhere and with seizures I of course no longer have a drivers licence. So I'm pretty stuck unless I can negotiate some strange working hours to match the sporadic may as well not exist bus timetable for the nearest bus stop which of course is a car journey in itself away. I'll cross that bridge if and when I ever get to it.
Alas with every excitable feeling I get it's quickly knocked by a negative feeling of what if it's not possible? What if my seizures get in the way and stop me from progressing and achieving my aims? I've fought hard against it before though when they tried their hardest to stop me from completing my degree. Seizures didn't win that time and I'm hoping to make damn sure that it doesn't happen this time either. The thought is always there though, whispering threats at me constantly.
I know it's silly to dwell on the negativities of life but sometimes it hard to do anything else.
