Welsh Neuro-care

New plans to improve care for people with neurological conditions across Wales have been sent to consultation. This is brilliant news. Wales is a small country with very rural terrain for the most part meaning that a lot of people have difficulty accessing the care they need easily and within a certain time. Neurological services are hugely underfunded, severely over-stretched or barely in existence at all in a lot of areas. Hopefully these plans will go through and be put into action to improve the system dramatically to help the hundreds of thousands who need it! 

If you wish visit here to read the news story. 

Trip to the City of Bath

I have just been away for a few days on a last minute trip to Bath with a beautiful friend of mine. I had a phone call from her telling me she had taken some last minute annual leave from her job for her birthday and would I fancy a trip somewhere. I'll never give up an opportunity to get away or see my friends and so we chose somewhere we had never been before despite us both living surprisingly close to it for years, our destination was Bath.

We packed so much into our little trip including a few sessions of dressing up (love it!) We went from Victorian style clothing to characters in a Jane Austen novel and had so much fun in doing so! Whilst there we visited the magnificent Bath Abbey, dined at many a small cafe and larger restaurants from vintage afternoon tea rooms to gorgeous Italian. Walked around the city through it's incredibly beautiful buildings popping into museums and art galleries along with the traditional Roman Baths and dipped into the world of Jane Austen in the very house she used to stay in whilst she too visited Bath. 

 Flipping tired now so a catch up on some rest is most definitely needed!

Waiting.

Waiting is one of those things you really have to get used to whilst playing this medical condition game. Nothing is instant and time passes at a crawling pace. 

I'm waiting to start a new medicine at the moment but I have to wait for the report from my last appointment with my neurologist to come through the post. Once it has got through to me it means it will have gotten to my general doctor who I will then be able to make an appointment with and he can write me up the prescription. I feel like a child waiting for Christmas each morning I hope that the letter will drop through the door in the post but so far it hasn't and my heart drops every time I pick up the pile to find it isn't there. I can't complain though because we are unbelievably lucky to have the NHS but I can't help feeling disappointed. It would be easier on the heart if there was at least a date to expect it but there's nothing it's just the hope it will come and then I can start the new medicine and begin a new session of hope that it will work or at least help a little with my seizures. Anything is better than nothing.

Ok selfish, whiney post over! Stay well! 

One Big Decision

At the moment I'm stuck in a tangled web of pros and cons when it comes to decision making.

I'm trying to decide whether to stay living where I am at the moment or move back to my place of birth close to my dads half of my family at the opposite end of the country, North Wales.

It's taking over my thoughts almost entirely at the moment. Since my previous housemates left this house it just doesn't feel like the home I used to know and it's really been getting me down.

At the moment I'm telling myself it is going to happen and I will definitely be moving. I'm hoping to initially move in with my family while I find somewhere less rural for myself to live whilst still staying close to people I already know up there. Now the question is do I move as soon as possible or wait until the end of tenancy in June next year?

It will be a big culture shock despite being used to the ways of the countryside. I grew up there spending 12 years living in the valley. From the age of 12 though I have lived in a various places far less rural since, I'm 24 now so I will be returning to my birthplace after having spent half of my life away.

Medically it could be complicated in moving my care up to the local health board. I was originally diagnosed at a hospital under that health board but on transferring to a health board down here where I went to university I was lost in the system and it was a really frightening time. I was newly diagnosed given a prescription of mind and body altering medication, seizing left, right and centre and completely on my own without any medical care. It took me months of complaining to a GP before they finally took notice of me and thought to check the referral list that they low and behold found I was even on! I refuse to go through that again.

Best keep thinking long and hard and see what happens. 

Italia!

I've been away abroad for a little while but today is the day I catch up on all things life! I love these days it makes me feel more in control of everything... well... not quite EVERYTHING but you catch my drift. The list of what I have to do is so long but the good news is it's raining. Usually that would be pretty miserable but this means that I don't feel guilty that I'm stuck inside sorting things out. Instead I feel cosy and relaxed and can happily bumble along through the day. 

Any who here are some photo's from a lovely trip to Italy. We stayed in a lovely hotel just outside of Sorrento with a stunning view of Mount Vesuvius and visited Pompeii, Herculaneum, Amalfi and Ravello. Everywhere was absolutely stunning! 

If you can believe it this is just a VERY select few as I took so many photo's. Even then I was being careful not to over use my camera. I like to try and save a lot of what was to see just for my memory. Although given how bad my memory is that was probably a bad idea but then some places are just so special its just far better to see them only through your own eyes rather than down the lens of a camera. The travel bug is well and truly in my system again so I'll just have to see where I end up next! 

Off for a week!

Hmm I'm feeling the need to have a little blog revamp. Nothing to hefty just a little freshen up and some change.

It'll have to wait though as I'm jetting off to Italy during the early hours of tomorrow for a whole week woohooooooo!!! We're flying to Naples then basing ourselves in Sorrento and travelling about from there to places like Pompeii and the Island of Capri. 

I'm going with my nan so it'll be nice to take it slow and relax a lot so we can take in the beautiful sights at our own pace :)

I'm so excited and knowing us I now for a fact we will come back with a ton of photo's and lovely memories. 

So back to blogging in a week or so. Toodle pip!