New charm

Yet again it has been such a busy week and soooo much has happened including some pretty important life changing decisions (for the good though if it all plans out) and I had a neurology appointment this morning that has brought up some pretty big stuff. 

I'm busy packing to head up north in the morning to stay with my dad and family for a while at the moment so I'll have to get it all down some other time! BUSY BUSY!!

I did want to post a little picture of a cute little charm I bought the other day to add to my medical bracelet :) I love it! 

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Epilepsy Sucks UK

THESE PEOPLE ARE AMAZING. 

There really is no other way of putting it... and this is a link to their new BLOG. 

Please, please take a peek and find out the incredible things Epilepsy Sucks UK do. Thanks to them many children and adults have quite possibly had their lives saved. This is down to the fact that ESUK provide a sleep safe pillow free of charge to those who suffer with seizures using funds raised thanks to great amounts of time and effort from brilliant group of people :) 

Not only that, they are also incredibly good at offering good, honest advice and support on anything seizure related simply because they've gone through it themselves!

Website: esuk.uk.com

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Count down to Neuro App..

Yet another nightmare last night. In it I was trying to get to the end of a hospital corridor but my balance was so bad I could hardly walk forward :/ NOT nice. It felt so incredibly real though!

My nightmare's are probably down to the fact I'm seeing my neurology team in less than a week. I'm nervous and if I'm honest a little scared. Since I saw them a few months ago a lot has happened and as well as being in hospital, medicines not working and plenty more worrying. This is the first time I will have spoken to them in person about my change in diagnosis which has gone from generalised epilepsy with no cause, to them now believing there is indeed some form of damage in my frontal lobe which is causing my seizures.

I need to make sure I have a list of questions to ask before I get to the hospital. I ALWAYS forget to ask certain things when I see them so this time to make sure I get all the possible answers I can I am going well and truly prepared!! I suppose it's a mixture of terrible memory, nerves and the pressure of the situation itself as lets face you barely get any time with them and with so much to get through it's like performing a presentation to examiners or something! They don't mean it to in anyway but I find it all very intimidating... mostly the idea of people discussing my most vulnerable moments makes me very uncomfortable... But hey it's all for the best.

A friend of mine that stayed in the hospital with me when I was admitted last month is coming along  to the appointment as she witnessed seizures and can help me explain exactly what happened/happens plus help absorb what gets spoken about and help me remember it all :) I'm so thankful to her :) I'm off to meet with her over the weekend for a catch up which I really can't wait for too :D

Best start that list and then leave it by my bed to note things down on as for some reason when I'm trying to sleep or just having woken up is when these things pop to mind! 

Back to normality

I've just woken up from a mid afternoon nap to the smell of rain floating through my room and a rather damp scene outside. I love that intriguing smell though theres just something about it especially after it hasn't rained in a while. So cup of tea by my side and fresh air floating through the window I can finally sit down and catch up on some blogging :) 

My little extra sleep was well needed due to a surprisingly busy week. It started with FINALLY handing in the my dissertation and taking a much needed trip down to my mum's farm. 

It was just so nice to be able to stop for a little while and just potter around and about with the animals and soak up some sunshine taking walks along the coast etc. Well I say stop, what that actually meant was stop working and thinking about all things dissertation and focus on other things like helping out with farm jobs and discuss major life things in great detail with my mum like what am I going to do after uni ... thats a BIG question and slightly stress inducing question right there!! 

Then after getting back from there on Tuesday night I then had to set my alarm to get up at 4:15 the following morning to catch a coach to London for the day with some of my course mates. To be honest I didn't really feel like going but I'm so glad I did as it was a really nice day! We visited various exhibitions and beyond posh galleries that I wouldn't even think about entering... you know the kind you have to buzz into and that are hidden away in super rich areas of London on upper floors and massive town houses!

It did feel weird (in a nice way..) being back in London though... I used to live pretty close and could just hop on a train and within half an hour be arriving into London Paddington. It's funny how much life changes in so little time! Although I did forget how intimidating the city can be with huge masses of people pushing and shoving everywhere and how fast paced everything is... but then given that I'm used to the open countryside I'm not surprised I find it more than a little nerve wracking. Anyway we all got back off the coach in Newport at nearly 2am and I finally got into bed about 2:30 (LONG DAY!) and we were straight back into lectures Thursday and as much as the visiting lecture by photographer Sophy Rickett was fascinating I don't think I was the only one trying their best to stay awake! 

Then yesterday we had a meeting with the designer for our end of year publication and website with the university it's all very exciting stuff :D! It did however point out how much work we all have to do and in a very little amount of time so with no plans this weekend thankfully I have time to try and sort through the work I've done and make some plans as to where to take it next.... much easier said than done... never mind better crack on with it :) 

Dissertation = DONE.

I've done it, I've done it, I'VE DONE IT!!!!!!

My dissertation is COMPLETE. Written up, printed, bound and handed over to the uni.



It's taken over my life for so long I cannot wait to get back to my usual self!

Stress = gone so it's time to pick up my camera again and get out and about :D Starting with a trip to my mum's farm in Devon for a weekend of walking along the coast, catching up with my parents, hanging out with the animals and just generally chill out! And to make it all the better my friend is joining me :D! 

Proud to be Welsh

Dydd Gŵyl Dewi hapus! Happy St David's Day!

Today is the celebration for the patron saint of Wales. Daffodils are in full bloom and the Welsh flag is flying high. 

I remember back when I was younger dressing up for this day in the traditional "welsh lady" dress at primary school.  Fond memories right there!! 

Have a lovely day :)