Recent Happenings

It's been busy over here! At the moment I'm recovering from and allergic reaction to some medicine in amongst this heatwave we're having. It's HOT. Well hot for Britain anyway and I don't do very well seizure wise in heat so I spend most of my time next to a fan trying to keep cool. 

This is just  quick update on some happenings that have been going on...

My little niece Willow turned two years old so my dad and I travelled the 200 miles down to visit them for the day. She had a lovely little party at the local fire station (her dad is a retained fireman) and with lots of her little friends. We all had a great time.

Oo we had a choir concert the other night in which I sang soprano for nearly two hours under bright, hot lights and not once did I fall off the stage! 

 I've been creating little pieces of button art to auction off in aid of Epilepsy Sucks UK. I love little crafty projects like this and as well as keeping me occupied I find it very stress relieving.  So to put it to some good use by using it as a way to raise funds for the charity makes it all the nicer. 

I also had another neurology appointment. In which my consultant watched a recent video of me having a seizure and did that thing (that really frustrates me) where by he watched the video silently whilst furiously writing down things in his notes! Off the back of the video and me giving him the list of seizure I've had since I last saw him he increased my dose of Keppra to the maximum made sure I have the nurses number to contact if I need to and that was pretty much that. I want to know what he saw in the video... he did say he would send me a report of our appointment so I'll see if it says anything in that although I doubt it will. 

I picked up a great little container to keep my various medicines in one place when I'm out and about from Medpac. It's bright orange which is great for if it needs to be grabbed out of another bag etc quickly and holds everything I need when out perfectly! 

The other day was awesome before my lovely medication reaction took hold. I've been dreaming about going to the beach for ages. My friends go quite a lot but I seem to always either be poorly, be recovering from injuries or have appointments planned etc. This time though I was free as a bird and feeling relatively human so off we went! I'd been eyeing up a new body board as well and finally got my hands on one and got to try it out on the waves. It was great! Sun, sea, sand and a great bunch of friends. 

Perfection!