I promise to be back blogging properly soon. I'm still in recovery from a close flirt with death. It's pretty hectic at the minute with various things needing to be sorted out in terms of the future. I'm also in and out of hospital (as an outpatient thankfully) due to complications from being on life support. Hopefully these won't be long lasting but only time will tell at the moment.
I'm currently living with some friends so I can be kept a close eye on at all times. I'm waiting for a some alarm systems to be installed in my own apartment so I can live relatively independently again whilst being monitored. One will be a fall alarm that I will wear all the time I'm at home. The basic idea is that if I go into a seizure and fall to the ground the alarm will be set off and my nominated people will be informed that there may be a problem and seek appropriate help. Another is a seizure alarm for my bed which will simply alarm when I go into a seizure during sleep and seek help from others on my behalf.
Great news is I've been doing fairly well in terms of seizures which feels amazing!
Once things are more settled again and my head feel bit more straight then I will be far more prepared to settle down and write about this crazy adventure I'm on...
Speak soon x
I am so glad to hear from you - I have been worried! I have been reading your blog for just over a year, ever since my 16-year old daughter was diagnosed with epilepsy. I hope that things continue on a good trajectory!
ReplyDeleteI as well. Looking forward to reading your blog! I am so glad you are OK!
ReplyDeleteI love your sharing. This Getting Adam Back - a mother's triumph over epilepsy and autism is helpful :)
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