My very own guardian angel

I often take naps during the day for a couple of hours. It's my time to get some rest and re-set my mind for the rest of the day. At the moment things are tough seizure and energy wise and I'm sleeping in the afternoons everyday. 

I'm living with my parents at the moment because I'm needing to be constantly supervised and recently I keep waking up with one of their cats, a one year old named Kitty, sleeping beside me. She seems to know when I've gone for a nap (which to be fair is usually within the same two hour time frame every day) and she'll just sneak into where I am and curl up next to me. She always makes sure she is literally touching me as if making sure if I seize in my sleep she can feel it. I like to think she can tell I'm not feeling my best and that she's wanting to protect me :)

It's funny because I've learnt to play a game with her. When I wake up and move Kitty will wake up to and start playing around like the young cat she is but if I pretend to fall back to sleep again she will slump down wherever she is become completely still and fall back to sleep herself. Very cute indeed.

I've ALWAYS loved animals and had them in my everyday life. Without sounding too cheesy the power they have to make someone feel better is unbelievable. Pet therapy is an absolute must in life if you ask me! 

Please excuse the vanishing act.

It's been a while since I posted and I feel a little bad about it. There are reasons though and I'll be back to it soon enough.

I'm just having a little absence from life (if you'll excuse the pun...!) 

x 

Job interview

Gosh so much has been going on recently it's hard to keep up!

I have a job interview coming up tomorrow eeeeek! It's to become a disability support worker for university students. Although I'm "trained" in the arts, health care has always been in the back of my mind especially as a huge amount of my family are in this field in varying ways and it still comes up in conversations how my parents wonder how I never became a nurse. When my recent internship in photographic research came to an end I went to say thank you to the campus nurses who I spent rather a lot of time with due to seizures during the time. We talked for a long while and it somehow came up in conversation that I would make a good support worker and from then on it's been sitting in my mind and a very likely avenue I might go and explore while I have the chance. Low and behold a job came up, I took the plunge and decided to apply for it and bingo I have an interview! Despite having to apply after the deadline had past and with them having to specifically send out a paper application form to me to the hospital I was stuck in as well. I am SO very thankful that they took my application in despite this! 

I'm trying very hard not to become very nervous and at the moment I think I might just be making that possible but then it could well be another story tomorrow. I'm staying with family at the moment and have a 3 1/2 car journey to get there and we will be travelling back the same day too so it's going to be hard on the brain but we'll see how it goes. I'm not pinning all my hopes on this job though, I suspect there will be many applicants and people who have fear more experience than I do but anythings worth a shot! 

*Fingers crossed* 

Race for Life 2013

I'm so bored sitting in a stuffy hospital room so for some entertainment I thought I'd post a little something.

This year my youngest sister and I decided to run the Race for Life in support of Cancer Research. It was SUCH a lovely day! Our parents came all the way down the country to Cardiff for us to meet up and run it. It's not far, only 5k but neither of us trained and we both completed the course in 27 minutes which we were both pretty proud of!  

It's set us up motivation wise to find other challenges to complete nothing is to big or small :) 

So here's to the next event! 

Sneaky post

I'm supposed to resting as much as I can but I'm a little bored and surprisingly awake so I've snuck onto the net to say I'm stuck on hospital :( Have been here since last Monday.

Suffering very long clusters of seizures needing oxygen with each one. No one can seem to figure out why so who knows whats going to happen.

Hopefully they will leave me alone soon and I can get out of here!

Keep well all x

Travel insurance.

I'm going on a little trip to Italy in October with my Nanna and I simply cannot wait! Trying to get someone to insure me to go however is proving an absolute nightmare!!!

The questions they ask are so set in stone it's ridiculous trying to mould them to this condition as is the same with many more by the sounds of it. I am constantly hit by the image above which is basically a big fat NOT IN A MILLION YEARS WOULD WE INSURE YOU!!! Quotes have ranged from not giving any at all to the average being £719 :(

By some well earned miracle though I FINALLY (after spending forever on the phone) managed to find some for £84 which given that the base rate of this package is just £15 before medical screening is still A LOT of money. Well at least I can definitely go now though I don't have to worry too much if I end up getting very poorly as much as it would be horrible at least my Nan won't have to stress to much :)

It makes me so angry I mean what on earth is insurance for if they are too worried you're actually going to need it?! 

Ophthalmology

So I popped to the hospital on Tuesday as I had a review with ophthalmology. Sadly there is no change in my eyesight where I'm missing a rather large chunk in my upper left quadrant. I was really hoping it would have magically improved in someway as it's my brain causing it rather than my perfect (doctors words!) eyes. 

It was pretty standard appointment involving three different field vision tests then in to see the doctor to go over results. Last time I was in my consultant requested I be sent for an MRI scan to check if any bunches of blood cells etc are pressing against any optic nerves. When he asked me if I'd been for my MRI I simply replied no but I've got an appointment on Thursday for  CT head scan. His face was a picture of anger... and to justify it he said how he had specifically requested and MRI for a reason (don't ask me what...) as opposed to a CT. Any way long story to include a very angry doctor short when I was walking back home from the hospital my phone rang and it was the consultant saying that he had spoken with radiology and I was to still go along to the CT appointment only they are now adding contrast dye to the mix (which I am NOT looking forward to as it stings!!) and I'm now on the waiting list for an MRI. 

I have a check up with him again in 3 months time where yet again I'll take some field vision tests to see if there is any change in my peripheral vision. Hopefully I'll have some results waiting for my from my scans to but that might be wishful thinking when it comes to and MRI!